American Journal of Epidemiology Vol. 154, No. 6 : 563-573
Copyright © 2001 by The Johns Hopkins University School of Hygiene and Public Health
PRACTICE OF EPIDEMIOLOGY |
Retention of Women Enrolled in a Prospective Study of Human Immunodeficiency Virus Infection: Impact of Race, Unstable Housing, and Use of Human Immunodeficiency Virus Therapy
1 Department of Medicine, University of California, San Francisco, CA.
2 Department of Epidemiology, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD.
3 Department of Epidemiology and Biostatistics, University of California, San Francisco, CA.
4 Georgetown University Medical Center, Washington, DC.
5 University of Southern California Medical Center, Los Angeles, CA.
6 Health Science Center, State University of New York, Brooklyn, NY.
7 Montefiore Medical Center, Bronx, NY.
8 Division of AIDS, National Institute of Allergy and Infectious Diseases, National Institutes of Health, Bethesda, MD.
9 The Core Center, Cook County Hospital, Chicago, IL.
Even though women and people of color represent an increasing proportion of US acquired immunodeficiency syndrome (AIDS) cases, few research studies include adequate representation of these populations. Here the authors describe recruitment and retention of a diverse group of human immunodeficiency virus (HIV)-infected and at risk HIV-uninfected women in a prospective study operating in six sites across the United States. Methods used to minimize loss to follow-up in this cohort are also described. For the first 10 study visits that occurred during a 5-year period between 1994 and 1999, the retention rate of participants was approximately 82%. In adjusted Cox analysis, factors associated with retention among all women were older age, African-American race, stable housing, HIV-infected serostatus, past experience in studies of HIV/AIDS, and site of enrollment. In an adjusted Cox analysis of HIV-infected women, African-American race, past experience in studies of HIV/AIDS, site of enrollment, and reported use of combination or highly active antiretroviral HIV therapy at the last visit were significantly associated with retention. In adjusted Cox analysis of HIV-uninfected study participants, only the site of enrollment was significantly associated with study retention. These results show that women with and at risk for HIV infection, especially African-American women, can be successfully recruited and retained in prospective studies.
cohort studies; HIV; prospective studies; women
Abbreviations: AIDS, acquired immunodeficiency syndrome; HIV, human immunodeficiency virus; WIHS, Women's Interagency HIV Study
CiteULike 
Connotea 
Del.icio.us What's this?
This article has been cited by other articles:
|
|
 |
|
  J Busza, B Zaba, and M Urassa The "seeded" focus group: a strategy to recruit HIV+ community members into treatment research Sex Transm Inf, June 1, 2009; 85(3): 212 - 215. [Abstract] [Full Text] [PDF]
|
|
|
|
 |
|
 R. L. Cook, F. Zhu, B. H. Belnap, K. Weber, J. A. Cook, D. Vlahov, T. E. Wilson, N. A. Hessol, M. Plankey, A. A. Howard, et al. Longitudinal Trends in Hazardous Alcohol Consumption Among Women With Human Immunodeficiency Virus Infection, 1995-2006 Am. J. Epidemiol., April 15, 2009; 169(8): 1025 - 1032. [Abstract] [Full Text] [PDF]
|
|
|
|
|
|
P. L. Williams, R. Van Dyke, M. Eagle, D. Smith, C. Vincent, G. Ciupak, J. Oleske, G. R. Seage III, and for the PACTG 219C Team Association of Site-specific and Participant-specific Factors with Retention of Children in a Long-term Pediatric HIV Cohort Study Am. J. Epidemiol., June 1, 2008; 167(11): 1375 - 1386. [Abstract] [Full Text] [PDF]
|
|
|
|
 |
|
 R. A. Alvarez, E. Vasquez, C. C. Mayorga, D. J. Feaster, and V. B. Mitrani Increasing Minority Research Participation Through Community Organization Outreach West J Nurs Res, August 1, 2006; 28(5): 541 - 560. [Abstract] [PDF]
|
|
|
|
 |
|
 J. K. Burke-Miller, J. A. Cook, M. H. Cohen, N. A. Hessol, T. E. Wilson, J. L. Richardson, P. Williams, and S. J. Gange Longitudinal Relationships Between Use of Highly Active Antiretroviral Therapy and Satisfaction With Care Among Women Living With HIV/AIDS Am J Public Health, June 1, 2006; 96(6): 1044 - 1051. [Abstract] [Full Text] [PDF]
|
|
|
|
|
|
J. G. Feldman, H. Minkoff, M. F. Schneider, S. J. Gange, M. Cohen, D. H. Watts, M. Gandhi, R. S. Mocharnuk, and K. Anastos Association of Cigarette Smoking With HIV Prognosis Among Women in the HAART Era: A Report From the Women's Interagency HIV Study Am J Public Health, June 1, 2006; 96(6): 1060 - 1065. [Abstract] [Full Text] [PDF]
|
|
|
|
|
|
A. J. Silvestre, J. B. Hylton, L. M. Johnson, C. Houston, M. Witt, L. Jacobson, and D. Ostrow Recruiting Minority Men Who Have Sex With Men for HIV Research: Results From a 4-City Campaign Am J Public Health, June 1, 2006; 96(6): 1020 - 1027. [Abstract] [Full Text] [PDF]
|
|
|
|
 |
|
 M. J. Silverberg, M. F. Schneider, B. Silver, K. M. Anastos, R. D. Burk, H. Minkoff, J. Palefsky, A. M. Levine, and R. P. Viscidi Serological Detection of Human Papillomavirus Type 16 Infection in Human Immunodeficiency Virus (HIV)-Positive and High-Risk HIV-Negative Women Clin. Vaccine Immunol., April 1, 2006; 13(4): 511 - 519. [Abstract] [Full Text] [PDF]
|
|
|
|
|
|
M. C. Bacon, V. von Wyl, C. Alden, G. Sharp, E. Robison, N. Hessol, S. Gange, Y. Barranday, S. Holman, K. Weber, et al. The Women's Interagency HIV Study: an Observational Cohort Brings Clinical Sciences to the Bench Clin. Vaccine Immunol., September 1, 2005; 12(9): 1013 - 1019. [Full Text] [PDF]
|
|
|
|
|
|
M. H. Cohen, J. A. Cook, D. Grey, M. Young, L. H. Hanau, P. Tien, A. M. Levine, and T. E. Wilson Medically Eligible Women Who Do Not Use HAART: The Importance of Abuse, Drug Use, and Race Am J Public Health, July 1, 2004; 94(7): 1147 - 1151. [Abstract] [Full Text] [PDF]
|
|
|
|
 |
|
 H. D. Strickler, J. M. Palefsky, K. V. Shah, K. Anastos, R. S. Klein, H. Minkoff, A. Duerr, L. S. Massad, D. D. Celentano, C. Hall, et al. Human Papillomavirus Type 16 and Immune Status in Human Immunodeficiency Virus-Seropositive Women J Natl Cancer Inst, July 16, 2003; 95(14): 1062 - 1071. [Abstract] [Full Text] [PDF]
|
|
|
|
|
|
J. A. Cook, M. H. Cohen, D. Grey, L. Kirstein, J. Burke, K. Anastos, H. Palacio, J. Richardson, T. E. Wilson, and M. Young Use of Highly Active Antiretroviral Therapy in a Cohort of HIV-Seropositive Women Am J Public Health, January 1, 2002; 92(1): 82 - 87. [Abstract] [Full Text] [PDF]
|
|
|
|
 |
|
 Retaining HIV-Positive Women in Epidemiologic Studies Journal Watch Infectious Diseases, October 19, 2001; 2001(1019): 12 - 12. [Full Text]
|
|