| ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
American Journal of Epidemiology Vol. 128, No. 1: 206-217
Copyright © 1988 by The Johns Hopkins University School of Hygiene and Public Health
research-article |
THE EVALUATION OF THE DATA COLLECTION PROCESS FOR A MULTICENTER, POPULATION-BASED, CASE-CONTROL DESIGN
1Division of Reproductive Health, Center for Health Promotion and Education, Centers for Disease Control Atlanta, GA 30333
2Information Resources Management Office, Centers for Disease Control Atlanta, GA
3Office of the Director, Centers for Disease Control Atlanta, GA
Send reprint requests to Ms. Phyllis A. Wingo at this address
This report details the methods the authors used to conduct the Cancer and Steroid Hormone Study, a multicenter, population-based, case-control study of oral contraceptive use in relation to breast, endometrial, and ovarian cancer diagnosed during 1980–1982. The authors have documented their methods and rationale, and the results of their data collection efforts as a practical guide for the planning and conduct of large case-control studies. They observed the following: 1) the Surveillance, Epidemiology, and End Results program is a useful epidemiologic resource for identifying cases from which to evaluate risk factors for cancer in the United States; 2) random digit dialing is an effective and efficient method for screening for eligible controls for a population-based study; 3) with the cooperation of community pathologists, histologic specimen slides can be retrieved and reviewed for diagnostic confirmation and histologic subclassification of cancer for greater than 95% of the cases interviewed; and 4) data reported during personal interviews of study participants can be validated by reviewing medical records for more than 75% of study participants who reported medical events that occurred during the 10 years before the beginning of the study.
epidemiologic methods; interviews; prospective studies
4The Cancer and Steroid Hormone Study Group: Principal Investigator, George L. Rubin; Project Director, Phyllis A. Wingo; Project Associates, Nancy C. Lee, Michele G. Mandel, and Herbert B. Peterson; Data Collection Centers Principal Investigators, Atlanta—Raymond Greenberg; Connecticut—J. Wister Meigs and W. Douglas Thompson; Detroit, Michigan—G. Marie Swanson; Iowa—Elaine Smith; New Mexico—Charles Key and Dorothy Pathak; San Francisco—Donald Austin; Seattle—David Thomas; Utah—Joseph Lyon and Dee West; Pathology Review Principal Investigators, Fred Gorstein, Robert Mc-Divitt, and Stanley J. Robboy; Project Consultants, Lonnie Burnett, Robert Hoover, Peter M. Layde, Howard W. Ory, James J. Schlesselman, David Schottenfeld, Bruce Stadel, Linda A. Webster, and Colin White; and Pathology Consultants, Walter Bauer, William Christopherson, Deborah Gersell, Robert Kurman, Allen Paris, and Frank Vellios.
CiteULike 
Connotea 
Del.icio.us What's this?
This article has been cited by other articles:
|
|
 |
|
  R. T. Chlebowski, G. L. Anderson, D. S. Lane, A. K. Aragaki, T. Rohan, S. Yasmeen, G. Sarto, C. A. Rosenberg, F. A. Hubbell, and For the Women's Health Initiative Investigators Predicting Risk of Breast Cancer in Postmenopausal Women by Hormone Receptor Status J Natl Cancer Inst, November 21, 2007; 99(22): 1695 - 1705. [Abstract] [Full Text] [PDF]
|
|
|
|
 |
|
 P. A. Wingo, H. Austin, P. A. Marchbanks, M. K. Whiteman, J. Hsia, M. G. Mandel, H. B. Peterson, and H. W. Ory Oral Contraceptives and the Risk of Death From Breast Cancer Obstet. Gynecol., October 1, 2007; 110(4): 793 - 800. [Abstract] [Full Text] [PDF]
|
|
|
|
 |
|
 M. K. Whiteman, S. D. Hillis, K. M. Curtis, J. A. McDonald, P. A. Wingo, and P. A. Marchbanks Body Mass and Mortality After Breast Cancer Diagnosis Cancer Epidemiol. Biomarkers Prev., August 1, 2005; 14(8): 2009 - 2014. [Abstract] [Full Text] [PDF]
|
|
|
|
|
|
M. K. Whiteman, S. D. Hillis, K. M. Curtis, J. A. McDonald, P. A. Wingo, and P. A. Marchbanks Reproductive History and Mortality After Breast Cancer Diagnosis Obstet. Gynecol., July 1, 2004; 104(1): 146 - 154. [Abstract] [Full Text] [PDF]
|
|
|
|
 |
|
 S. L. Glaser, C. A. Clarke, R. A. Nugent, C. B. Stearns, and R. F. Dorfman Reproductive Factors in Hodgkin's Disease in Women Am. J. Epidemiol., September 15, 2003; 158(6): 553 - 563. [Abstract] [Full Text] [PDF]
|
|
|
|
|
|
N. C. Briggs, H. I. Hall, E. A. Brann, C. J. Moriarty, and R. S. Levine Cigarette Smoking and Risk of Hodgkin's Disease: A Population-based Case-Control Study Am. J. Epidemiol., December 1, 2002; 156(11): 1011 - 1020. [Abstract] [Full Text] [PDF]
|
|
|
|
 |
|
 P. A. Marchbanks, J. A. McDonald, H. G. Wilson, S. G. Folger, M. G. Mandel, J. R. Daling, L. Bernstein, K. E. Malone, G. Ursin, B. L. Strom, et al. Oral Contraceptives and the Risk of Breast Cancer N. Engl. J. Med., June 27, 2002; 346(26): 2025 - 2032. [Abstract] [Full Text] [PDF]
|
|
|
|
|
|
J. M. Schildkraut, B. Calingaert, P. A. Marchbanks, P. G. Moorman, and G. C. Rodriguez Impact of Progestin and Estrogen Potency in Oral Contraceptives on Ovarian Cancer Risk J Natl Cancer Inst, January 2, 2002; 94(1): 32 - 38. [Abstract] [Full Text] [PDF]
|
|
|
|
 |
|
 M P. Madigan, R. Troisi, N. Potischman, D. Brogan, M. D Gammon, K. E Malone, and L. A Brinton Characteristics of respondents and non-respondents from a case-control study of breast cancer in younger women Int. J. Epidemiol., October 1, 2000; 29(5): 793 - 798. [Abstract] [Full Text] [PDF]
|
|
|
|
|
|
P. A. MARCHBANKS, H. WILSON, E. BASTOS, D. W. CRAMER, J. M. SCHILDKRAUT, and H. B. PETERSON Cigarette Smoking and Epithelial Ovarian Cancer by Histologic Type Obstet. Gynecol., February 1, 2000; 95(2): 255 - 260. [Abstract] [Full Text] [PDF]
|
|
|
|
|
|
J. M. SCHILDKRAUT, S. HALABI, E. BASTOS, P. A. MARCHBANKS, J. A. MCDONALD, and A. BERCHUCK Prognostic Factors in Early-Onset Epithelial Ovarian Cancer: A Population-Based Study Obstet. Gynecol., January 1, 2000; 95(1): 119 - 127. [Abstract] [Full Text] [PDF]
|
|
|
|
|
|
J. P. Costantino, M. H. Gail, D. Pee, S. Anderson, C. K. Redmond, J. Benichou, and H. S. Wieand Validation Studies for Models Projecting the Risk of Invasive and Total Breast Cancer Incidence J Natl Cancer Inst, September 15, 1999; 91(18): 1541 - 1548. [Abstract] [Full Text] [PDF]
|
|
|
|
 |
|
 L. W. Bassett, V. P. Jackson, G. Cardenosa, D. B. Kopans, C. J. D'Orsi, M. N. Linver, P. J. Dempsey, E. B. Mendelson, D. D. Dershaw, B. Monsees, et al. Risk of Risk-Based Mammography Screening, Ages 40 to 49 J. Clin. Oncol., February 1, 1999; 17(2): 730 - 730. [Full Text] [PDF]
|
|
|
|
 |
|
 P Cumming, J L Stanford, J R Daling, N S Weiss, and B McKnight Risk of breast cancer in relation to the interval since last full term pregnancy BMJ, June 25, 1994; 308(6945): 1672 - 1674. [Abstract] [Full Text]
|
|