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American Journal of Epidemiology Vol. 123, No. 5: 894-900
Copyright © 1986 by The Johns Hopkins University School of Hygiene and Public Health


research-article

VALIDATION OF QUESTIONNAIRE INFORMATION ON RISK FACTORS AND DISEASE OUTCOMES IN A PROSPECTIVE COHORT STUDY OF WOMEN

GRAHAM A. COLDITZ1,2, PAULINE MARTIN1, MEIR J. STAMPFER1,2, WALTER C. WILLETT1,2, LAURA SAMPSON1, BERNARD ROSNER1, CHARLES H. HENNEKENS1 and FRANK E. SPEIZER1

1Channing Laboratory, Departments of Medicine and Preventive Medicine and Clinical Epidemiology, Harvard Medical School and Brigham and Women's Hospital Boston, MA
2Department of Epidemiology, Harvard School of Public Health Boston, MA

Reprint requests to Dr. Graham A. Colditz, Channing Laboratory, 180 Longwood Avenue, Boston, MA. 02115

To assess the validity of self-reported illnesses, medical records were reviewed for participants reporting major illnesses on the biennial follow-up questionnaires used in a prospective cohort study which began in 1976. In over 90% of cases of cancer of the breast, skin, large bowel, and thyroid, histopathology reports confirmed the subjects' self-report. Lower levels of confirmation were obtained for cancers of the lung, ovary, and uterus. Application of strict diagnostic criteria also gave lower levels of confirmation for myocardial infarction (68%) and stroke (66%). Among random samples of women reporting fractures and hypertension all records obtained confirmed self-reports. For self-reported elevated cholesterol levels 85.7% of self-reports were confirmed. Self-report is a valuable epidemiologic tool but may require additional documentation when the disease is diagnostically complex.

diagnosis; follow-up studies; medical records; questionnaires


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Am J EpidemiolHome page
M. J. LaMonte, S. J. FitzGerald, T. S. Church, C. E. Barlow, N. B. Radford, B. D. Levine, J. J. Pippin, L. W. Gibbons, S. N. Blair, and M. Z. Nichaman
Coronary Artery Calcium Score and Coronary Heart Disease Events in a Large Cohort of Asymptomatic Men and Women
Am. J. Epidemiol., September 1, 2005; 162(5): 421 - 429.
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Am J EpidemiolHome page
A. Rahman, L. Gibney, S. D. Person, O. D. Williams, C. Kiefe, P. Jolly, and J. Roseman
Validity of Self-Reports of Reasons for Hospitalization by Young Adults and Risk Factors for Discordance with Medical Records: The Coronary Artery Risk Development in Young Adults (CARDIA) Study
Am. J. Epidemiol., September 1, 2005; 162(5): 491 - 498.
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HypertensionHome page
J. P. Forman, M. J. Stampfer, and G. C. Curhan
Non-Narcotic Analgesic Dose and Risk of Incident Hypertension in US Women
Hypertension, September 1, 2005; 46(3): 500 - 507.
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JCOHome page
K.-A. Phillips, R. L. Milne, S. Buys, M. L. Friedlander, J. H. Ward, M. R.E. McCredie, G. G. Giles, and J. L. Hopper
Agreement Between Self-Reported Breast Cancer Treatment and Medical Records in a Population-Based Breast Cancer Family Registry
J. Clin. Oncol., July 20, 2005; 23(21): 4679 - 4686.
[Abstract] [Full Text] [PDF]


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Diabetes CareHome page
L. Whiteley, S. Padmanabhan, D. Hole, and C. Isles
Should Diabetes Be Considered a Coronary Heart Disease Risk Equivalent?: Results from 25 years of follow-up in the Renfrew and Paisley Survey
Diabetes Care, July 1, 2005; 28(7): 1588 - 1593.
[Abstract] [Full Text] [PDF]


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HypertensionHome page
P. Raggi, B. Cooil, C. Ratti, T. Q. Callister, and M. Budoff
Progression of Coronary Artery Calcium and Occurrence of Myocardial Infarction in Patients With and Without Diabetes Mellitus
Hypertension, July 1, 2005; 46(1): 238 - 243.
[Abstract] [Full Text] [PDF]


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Cancer Epidemiol. Biomarkers Prev.Home page
J. Han, G. A. Colditz, J. S. Liu, and D. J. Hunter
Genetic Variation in XPD, Sun Exposure, and Risk of Skin Cancer
Cancer Epidemiol. Biomarkers Prev., June 1, 2005; 14(6): 1539 - 1544.
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Diabetes CareHome page
I. Shai, M. B. Schulze, J. E. Manson, K. M. Rexrode, M. J. Stampfer, C. Mantzoros, and F. B. Hu
A Prospective Study of Soluble Tumor Necrosis Factor-{alpha} Receptor II (sTNF-RII) and Risk of Coronary Heart Disease Among Women With Type 2 Diabetes
Diabetes Care, June 1, 2005; 28(6): 1376 - 1382.
[Abstract] [Full Text] [PDF]


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ptjournalHome page
W. G Boissonnault and M. B. Badke
Collecting Health History Information: The Accuracy of a Patient Self-administered Questionnaire in an Orthopedic Outpatient Setting
Physical Therapy, June 1, 2005; 85(6): 531 - 543.
[Abstract] [Full Text] [PDF]


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Inj. Prev.Home page
A Kostylova, B Swaine, and D Feldman
Concordance between childhood injury diagnoses from two sources: an injury surveillance system and a physician billing claims database
Inj. Prev., June 1, 2005; 11(3): 186 - 190.
[Abstract] [Full Text] [PDF]


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Am J EpidemiolHome page
R. Boynton-Jarrett, J. Rich-Edwards, S. Malspeis, S. A. Missmer, and R. Wright
A Prospective Study of Hypertension and Risk of Uterine Leiomyomata
Am. J. Epidemiol., April 1, 2005; 161(7): 628 - 638.
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NeurologyHome page
T. Kurth, M. A. Slomke, C. S. Kase, N. R. Cook, I.-M. Lee, J. M. Gaziano, H.-C. Diener, and J. E. Buring
Migraine, headache, and the risk of stroke in women: A prospective study
Neurology, March 22, 2005; 64(6): 1020 - 1026.
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Mayo Clin Proc.Home page
J. L. St. Sauver, P. T. Hagen, S. S. Cha, S. M. Bagniewski, J. N. Mandrekar, A. M. Curoe, R. J. Rodeheffer, V. L. Roger, and S. J. Jacobsen
Agreement Between Patient Reports of Cardiovascular Disease and Patient Medical Records
Mayo Clin. Proc., February 1, 2005; 80(2): 203 - 210.
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JAMAHome page
E. N. Taylor, M. J. Stampfer, and G. C. Curhan
Obesity, Weight Gain, and the Risk of Kidney Stones
JAMA, January 26, 2005; 293(4): 455 - 462.
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JAMAHome page
J. P. Forman, E. B. Rimm, M. J. Stampfer, and G. C. Curhan
Folate Intake and the Risk of Incident Hypertension Among US Women
JAMA, January 19, 2005; 293(3): 320 - 329.
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Arch Intern MedHome page
T. T. Fung, M. Schulze, J. E. Manson, W. C. Willett, and F. B. Hu
Dietary Patterns, Meat Intake, and the Risk of Type 2 Diabetes in Women
Arch Intern Med, November 8, 2004; 164(20): 2235 - 2240.
[Abstract] [Full Text] [PDF]


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J Health PsycholHome page
S. Yousfi, G. Matthews, M. Amelang, and C. Schmidt-Rathjens
Personality and Disease: Correlations of Multiple Trait Scores with Various Illnesses
J Health Psychol, September 1, 2004; 9(5): 627 - 647.
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QJMHome page
J. Porthouse, Y.F. Birks, D.J. Torgerson, S. Cockayne, S. Puffer, and I. Watt
Risk factors for fracture in a UK population: a prospective cohort study
QJM, September 1, 2004; 97(9): 569 - 574.
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StrokeHome page
T. T. Fung, M. J. Stampfer, J. E. Manson, K. M. Rexrode, W. C. Willett, and F. B. Hu
Prospective Study of Major Dietary Patterns and Stroke Risk in Women
Stroke, September 1, 2004; 35(9): 2014 - 2019.
[Abstract] [Full Text] [PDF]



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